And neither does anyone else.
Spent three hours at the doc’s office yesterday, where they do agree that there’s something weird going on, yet we’re no closer to any answers as to what’s wrong with me than we were before.
Except…
Maybe I do have some fluid building up around my heart/lungs that’s causing my breathing issues and adding to the swelling in my feet and legs (and, occasionally, hands).
To be treated for that, I need a different doctor. One who knows about such things and is able to monitor treatment.
“Who’s your primary?” everyone asks.
“I don’t have one. I’ve been out of work for almost 4 years and have no insurance. I don’t have doctors other than those related to work comp,” I reply, time and time again.
So now the surgeon’s office is going to battle the insurance company to get me in to see someone who can help. They wanted me to go to the ER again to get some Lasix to relieve some of the edema, but I said I just couldn’t bear the thought of spending hours in the ER…again…so soon. Plus, unless I went in with a note from them, do they really think the ER would listen to someone coming in, asking for Lasix? And it also brought up a huge question regarding my visit to the hospital on Monday: after eliminating all the clots and this and that, why didn’t they treat the edema? That could have, at the very least, relieved the swelling and pain in my feet and legs. And I might have felt better.
So I’m going to wait to hear from the doc’s office today to see what the latest round of tests say and to see if they think I should still go to the ER. I think I’m just exhausted and miserable enough to go. If I do go, I want the doc to call ahead and tell one of the ER docs what he thinks I need.
The worst part of the week so far? Getting a voice mail from Little Dude, asking if I’m going to be picking him up from school at any point this week. I just about lost it right then and there. I’d already talked to his dad about this, but a separate call to him was in order after I got home and got my head together. No crying during the call to the kid is allowed. I had to keep it together. And so I did. I called him and started at the beginning.
“Hey, LD. Remember last week when Mom didn’t feel so great?” I asked.
“What? Nobody told me about this!” he said.
“Yeah, we talked about it. We talked about how I was getting more and more tired and sore and didn’t feel quite right.”
“Oh, yeah. I thought you meant something else. I don’t know what I was thinking. But yeah, I remember you were slowing way down.”
“Okay, so that was part of it. Slowing down. Well, I really wasn’t feeling very well and things have gotten worse. I was at urgent care on Monday and then in the emergency room later that night. Don’t worry, Papa was with me. They did a bunch of tests and sent me home. But things still aren’t ‘right’. And I went to the doctor today and they don’t really know what’s going on. They’re trying to figure it out though, so that’s good news. Until they figure it out and I start to feel better, I’m going to have you stay with your dad and Yia-yia because I know they’ll take good care of you.”
“I’m sorry you don’t feel good. I love you. I miss you, too. But I want you to get better. I’m worried about you, though. Are you going to be okay? The doctors will make you okay, right?”
“I know, LD. I love you, too, and that’s why I’m letting you know what’s going on. I know you worry and I want you to hear from me about these things. It’s okay to worry a little but you have to follow that up with prayers. And right now, I also need you to pray for Mikey, okay? He’s in the hospital again and had to have surgery. So, if you’re going to say a prayer for me, you really have to say one for Mikey and his family, too. Okay?”
“Okay. And tell Mrs. Mikey and mini-Mikey I’m praying. And that I hope Mikey gets better soon.”
“Definitely!”
“Mom? Feel better soon. I love you and want you to feel good again.”
“I love you, kiddo.”
“You’ll call me and tell me what’s going on, right?”
“Yep. Promise.”
And with that, he was cool with everything. As long as I keep him informed, he’s okay. Like most kids, what he knows for certain is better than what he might end up imagining if left in the dark. He’s a worrier. Always has been. So I’m honest — to a degree. I don’t go into major detail. I keep it simple and keep it positive. That way, he knows things are being done to make everything right again.
It just sucks to not have him home with me. I miss him. Yet I know he’s safe where he is and that’s good.
My mind reels. Gotta take care of me so I can properly care for him, but it hurts to not have him here. I’ve already had to go through that (though it was 100 times worse — and permanent) with my daughter, I don’t want to go through it again with him, you know?
Still, I have to get better to be a good mom. And to have a life again.
Blah.
Oh, and wanna hear something funny? I sent this in an email to It’s kind of a silly recap, but nonetheless true. And a much better way to end a post.
The ortho department at the clinic is the one furthest from the front door of the place right? And I slowly made my way in. A few snails sped by and flipped me off for taking up so much room, but I ignored them. Then, I get orders for an xray. I shuffle down there. I ask for a wheelchair back because I’m hurting by that time. Only chair they had though was a skinny one. I can get in one like that but I can’t get out. (Seat is low, arms are high — just can’t make it work, plus it’s a really tight fit with my fat ass) I shuffle on back to my room. Then I get orders for labs. The lab is upstairs. The elevators are at the front, by the entrance to the clinic. I ask for a wheelchair…a wide one. Oddly enough, these are shallower in the seat and the arms are down lower, so it’s easy to get in and out of. The nurse finds me the right chair and takes me upstairs. No way I could walk all that. I’d still be there right now! Up to the lab. Into the bathroom for a urine sample, too. Fun. Made it. Get back downstairs. As the nurse is wheeling me into the room I say, you know it’s a good thing you took me because otherwise I’d still be making my way to the elevators to get up there. He laughed. And then I broke out in this horrible sweat again. Followed by chills. Lather, rinse, repeat.
Time to go back to sleep until the doctor’s office calls.