2022/04/29

Ugh (a.k.a. When the Cure Sucks)

Da Goddess @ 12:21

One of the worst parts of being sick is getting treatment that feels as awful as the illness.

While I, no doubt, am benefiting from the treatment I’m receiving, the “cure” is making me feel sicker than a dog who eats rancid trash straight from the bin.

One of the new meds has, unfortunately, some side effects that are making me sick. Not that I’m regretting my decision to do the study or anything. I’m just hating the adjustment period that sometimes comes with new medication. I also really, really, really hate throwing up. I loathe it.

The upside to meds that make me feel sick can be summed up thusly: I may lose weight. If I’m going to be nauseated, vomiting puking my guts out, appetite suppressed, etc., I should see some weightloss. However, there’s a good way to do it and a decidedly not so good way to do it. I’m getting the not so good way.

Take yesterday. I woke up, didn’t have any appetite. I knew I should eat something, but nothing sounded appealing. So I stuck with water. Water I had to mostly force myself to drink (yet another fun side effect of the one med). But it felt good going down and I was happy to have done the right thing for my body. About three hours later, I decided I was ready to try some food. I grabbed something from the freezer (I’ve filled it with homemade happiness over the last few weeks), nuked it up, grabbed a cold coke (my blood glucose has been remarkably and steadily toward the low end — occasionally too low, in fact), and began eating. Halfway through, I started feeling queasy. It seemed to abate easily enough, so I continued picking my way through. Then the severe nausea hit in earnest (as if it would do so mildly!) and I raced to the bathroom. I barely made it, despite the bathroom being all of ten feet away. Everything I’d just eaten (not a great deal) came violently spewing forth. Oddly enough, it looked as though I’d eaten four times the amount of what I had managed to get down. It made no sense. Oh well. I guess it was better than just bile. In my experience, if it’s just bile, it hurts more coming up. It’s as if your entire body is straining to get that little bit up and out. That said, the force of this particular vomit sesh left my arms and hands in pain and tingling. It was…awful. Why does vomiting make you hurt sometimes? I have no idea and can’t recall that ever being discussed in nursing school or at any job. Weird.

It took a nap and many more hours before I was ready to attempt eating again. I opted for an English muffin. Sourdough, to be exact. With butter. And cold water. Nothing sweet, thank you very much. It stayed down. Well enough so I tackled two small pieces of leftover pizza. That stayed down as well. Thank God!

Look, I really want to get to a much healthier place, not just from a post-Covid standpoint, but also with weight and everything else. I don’t mind appetite suppression, but can I please have that without the nausea and vomiting? I’d greatly appreciate it.

2022/04/26

45 Days

Da Goddess @ 12:00

I got accepted into a long Covid study. Forty-five days of monitoring my symptoms on medications and various other treatments.

It looks like it’ll consist of twice weekly checks on me, how I’m doing with meds, and if there’s any improvement.

I didn’t think I’d qualify based on the fact that they weren’t monitoring me from the beginning of the infection, but that’s kind of the point for the study. That’s fine by me. Anything that helps raise the profile of long Covid is worth doing. If it helps to refine the process of treatment for others, it’s a good thing. If it helps to identify the signs and symptoms as well as the need for treatment of long Covid sooner, that’s even better.

There’s no stipend, but I get free meds, free appointments, free monitoring at home, it’s going to help track the effects of the disease process, and maybe even help stave off more serious complications from Covid.

With more and more people discovering they’ve developed long-term health problems from the virus (any variant), it’s comforting to know there are teams out there putting time and effort into making life easier for those who’ve found themselves on the losing end of this awful illness.

I can’t stress enough how fortunate I feel that I had a mild case and didn’t end up in hospital, on a respirator, or losing my life from Covid. If not for the vaccine, I don’t know that I’d be here or be in good enough shape to write this.

Yes, I still got sick. Yes, I still ended up with long Covid. But at least I’m still here and able to contribute to the development of protocols for others.

If you’re not yet vaccinated, please consider doing so. We have no idea what the next variant will do or when it’ll hit…but hit, it will. There are so many places where hospitals are at capacity once again. The airlines are already seeing a loss of flight staff since declaring an end to mandatory masking. As more people feel emboldened to eschew masks, travel more freely, and return to pre-pandemic behavior, this will only get worse. We’re not done with Covid and it’s not done with us.

Please protect yourself and your loved ones by getting vaccinated and boostered. Mask up. Wash your hands like they’re covered in shit. Sanitze the house like you just discovered an Ebola outbreak. It’s our best defense against prolonging the pandemic.

And please, remember that I wasn’t out and about when I got infected. It was brought home by someone who thought he was safe because he’d had it before and had been vaccinated since. Covid’s gonna Covid. There’s no grace for those who don’t believe in the virulence of it. It can happen to anyone. It happened to me.

2022/04/21

WTAF? Too Hot

Da Goddess @ 03:09

Today is supposed to be hitting 97°. That’s just bonkers, if you ask me.

It’s late-mid-April. It doesn’t need to be that hot already!

H’s brother-in-law is a weatherman here and I’ve already cussed him out about it.

What’s the point of having friends in high places if they can’t pull a few strings for you?

Test results should be in today. Not sure if I really want to know. However, I know in my heart of hearts it’s better to know and start treatment if that’s what is needed. The earlier you catch the problem, the earlier you start treating it, the better the outcome. My nurse brain accepts this wisdom, yet my denial meter screams “NOOOOOOO!”

Fingers crossed!

2022/04/13

And So It Goes

Da Goddess @ 23:45

There’s nothing standing in the way of Long Covid around here. Nope. Not a damn thing.

Vaccines? Boosters? Masks? Handwashing? Hand sanitizing? Staying home? Cleaning every surface with the intensity of a obsessive compulsive? Check × 7.

But! And this is a HUGE BUT! Without the vaccine and boosters and all the other measures, I’d have been sicker and could’ve been hospitalized. Thus, I’m exceedingly grateful for all the steps taken to ensure my infection was mild and short-lived.

What I didn’t expect was ending up with Long Covid. The pulmonary effects, I understand. The headaches, I think I’ve come to terms with them. The odd sleep patterns have been part of my life for ages; they’re just different these days. But now there are palpitations and other nasty little bits of cardiac complications that may never go away completely. Oh, and a funky bunch of kidney/urinary things that have cropped up. Whether from the meds, the infection, or a combination thereof, remains to be seen.

I’m being treated for all my symptoms, being worked up for the new ones, put on medication — hopefully — temporarily. I just wish I could see the light at the end of the tunnel for a change.

Basically, it’s been party city all the way ’round.

Omicron has been a nasty motherfucker. I don’t want to meet the newest version of it or any other version of Covid. Ever. I highly recommend you do your best to avoid all strains as well. I wouldn’t wish this shit on my worst enemy.

2022/04/02

Variety is the Spice of Life

Da Goddess @ 22:49

Consider this a big ol’ melting pot of stuff. Instead of a bunch of short posts, I’m tossing everything in this one post. Bam! Consider this thing spiced!

Post-Covid: I’m still having flares every week or so. Fevers, sweats, coughing fits, chest tightness, etc etc etc. It got so bad, I ended up in the emergency department one afternoon. Came home with inhalers and a nebulizer and more potions than you can shake a stick at. I mean, you could shake a stick at them, but it would just be a waste of time and energy. I do not have energy to spare these days.

The only good thing about this lingering nonsense is I’ve had a bit more sleep since getting medication to suppress the cough.

Social security: money has finally started to hit my account. Oh, and I had to get a new account. It’s all good. Opening a new account took 20 minutes from beginning to end. And that was a revelation! Once done, I had money in less than a week. It’s going to be a while before the next installment of back pay comes, but I don’t mind as long as my monthly payments show up.

Food: I’ve been using my time to play around with recipes. I’ve done everything from a lemon loaf to Mexican to Chinese to Polish to a little French to good old American fare. I don’t have a ton of energy, but I make what I have work. Thus far, it’s all turned out well. H appreciates the results, as does the adorable idiot who has stolen more than any animal I’ve ever known. Unless the food is in the oven, up on a high shelf, or in the fridge, he’ll find a way to it and steal it. He has no remorse. None. Cookie just looks at DJuke like he’s the dumbest thing on earth, especially if she didn’t get any of the food. Otherwise, she pretends she knows nothing about the heist.

Art projects: I’ve started collecting for another art project. Yes, I’m still collecting bread tags of all shapes, colors, and sizes. I’m also now collecting the stopper clips from nasal spray bottles. (See photos below.) I’m not basing everything I’m doing on items normally thrown away, but these two projects in particular are using things that one would toss without a second thought.

If you have any either of these things, please save them for me and let me know. I will pay for the shipping. It’s actually very inexpensive and it’s nice to know I’m repurposing things that would either end up in a landfill or the ocean.

Stopper clips

Bread tags

That’s all there is for this round of What the Hell is She Up To?!

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